Who We Are

Welcome to the Huntington's Disease Society of America's Northeast Region. Our region covers the Mid-Atlantic, New England, New Jersey, and New York areas of the country.

Our region includes the following chapters and affiliates:
  • Albany Chapter
  • Chesapeake Bay Affiliate
  • Connecticut Chapter
  • Eastern Pennsylvania Chapter
  • Greater New York Chapter
  • Maine Affiliate
  • Massachusetts & Rhode Island Chapter
  • New Hampshire Affiliate
  • New Jersey Chapter
  • Upstate New York Chapter
  • Western Pennsylvania Chapter


Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.



Our Vision

A world free of Huntington's disease.

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.


HDSA Centers of Excellence

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page


Contact Us

HDSA Regional Development Officers
Virginia Goolkasian
PO Box 14
Chelmsford, MA 01824
p. (978) 905-5588
e. vgoolkasian@hdsa.org

Melinda Jensen
p. (212)-242-1968 ext: 236
e. mjensen@hdsa.org